What's GLOW??
What's GLOW??
What's GLOW??
We are a family fun race event set up to advocate, fundraise, and build community for those who live with Galactosemia.
This rare disease receives $0 funds from the government to build research and outreach programs.
Over the years our virtual option has taken off, and you will find participants across all 50 states GLOWING with us on behalf of Galactosemia.
GLOW goals
What's GLOW??
What's GLOW??
1. Provide education+ spread awareness about Galactosemia.
2. Raise money for the Galactosemia Foundation to fund research and outreach projects
3. Build community among people who live with or take care of someone with Galactosemia
4. Support the Galactosemia Foundation in initiatives that serve our rare disease community
GLOW History
What's GLOW??
GLOW History
In our 6 years of GLOW we raised over $200,000 together for the Galactosemia Foundation. This is thanks for our incredible sponsors, participants, virtual teams, volunteers, and individual donors. We are so grateful.
Thanks for helping to make the invisible, visible. Thanks for standing with us, and saying rare doesn't mean undeserving of treatment and answers.
Welcome to our site!
For more information such as the race map, parking, and overnight stay visit the link below! If you have more questions please reach out to me, Jamie, at Rhiegel1@gmail.com
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our story + why we glow
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GLOW for Galactosemia
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Head to our blog to find out what we are up to, what GLOW has done in the past, and what we are moving toward in the future!